Utveckling och utvärdering av ett webbaserat psykologiskt självhjälpsprogram för föräldrar till barn som tidigare behandlats mot cancer
Tidsperiod: 2015-01-01 till 2018-12-31
Projektledare: Louise von Essen
Medarbetare: Gustaf Ljungman, Sophie Langenskiöld, Brjann Ljotsson, Brjánn Ljótsson, Emma Hovén
Budget: 6 000 000 SEK
The purpose is to develop, test, and evaluate the clinical efficacy and cost-effectiveness of an online cognitive behavioral-based intervention for psychological distress for parents of children previously treated for cancer. To ensure end-user acceptance the Childhood Cancer Foundation Middle Sweden, parents with lived experience of having a child with cancer, and clinicians from pediatric oncology care are involved as research partners. The aims are to ensure that the online version of the intervention is relevant and acceptable (Study I); test recruitment, activity in the intervention, and retention, and estimate the preliminary effect size of the intervention (Study II); and evaluate the clinical efficacy and cost-effectiveness of the intervention (Study III). A participatory action research approach is used in Study I; quantitative and qualitative methodologies and an uncontrolled design are used in Study II; and a controlled design is used in Study III. In Study I participants are recruited via the Childhood Cancer Foundation Middle Sweden and the Childrens University Hospital, Uppsala; in Study II and III participants are identified via the Swedish Childhood Cancer Registry. The research has the potential to reduce suffering and unwanted consequences such as increased health care utilization and productivity loss for parents of children previously treated for cancer and provide targets for policy interventions for parents of children struck by a serious disease.